Aide Gone, Activism

My aide was taken away, so now i more than intensely dislike the home health care service. This is the same ...
stupidity that i suffered in Rochester. Just when I settle into some routine or expectancy it is snatched away.

So what is the universe trying to tell me? If all is change, then change my paralysis into mobility again.

And this happens AFTER i see her and so I must make do, go hungry and without food until the new person shows up, because of course it is not on the day-- Monday that I usually had support. Another relationship lost, severed.

So I've written several letters to the editor. In September, CEATS came to my house to assess what I was talking about in terms of getting assistance on a bus. THE BUS HAD NO SEAT BELTS AND ANCIENT TIE-DOWNS. So yes, I can get a bus and take 30 minutes to get to the grocery store-- usually 3 minutes away--- which now i won't do
because it's 40 degrees in October and they said i would have to sit for 20 minutes at the transportation center.

Why is there no on demand transport with all these agencies with lift buses?!!! Why is it Rochester can do it and Corning can't?! Corning is 1/6 the size and has 1/10 the problems and it is sheer negligence that there is no
dial a bus, dial a ride. So how much do i keep fighting this situation and for remediation... if i could walk i would not need their
assistance their neglect could go unheeded. United Way, the Steuben County Legislature, the Mayor, the state
senator, the state assemblyman, the office of the aged, the mayor, our congressman, and our US Senators,
I've written them each in turn and all. No one has fixed this.

And i see the fix. Get either Pathways or Founder's Pavilion to respond to calls-- give them money to extend their insurance to do this or sponsor a vehicle with the local cab company..... Surely a Fortune 200 company town can make this happen. Lord, please help me.

So this is the salt in the wound of not having the lady who knew how to shop effeciently so the 2 hours i had her, more
than the week's groceries could be gotten, I could actually get a bit of help in the house.....sob. I can't shop for myself and have lost someone who could.

Lack of Transportation

As Rochester discusses REDUCING the fares for the disabled, I, in this small city, have no transportation UNLESS
I am going to the the doctor.

How can this be, as busses with lifts rumble past my house nearly daily?

Hopefully where there is a will, there is a way.

Somehow, the local center for the disabled has not seen fit to make this happen. School buses could help in the off hours, the Founders Pavilion buses could help, the Pathways buses could help and the CEATS--- Corning Erwin Area Transportation, could help. But thus far they don't. Why in a place with few sidewalks, they won't help you over the rough terrain, beats me.

In the city of Rochester, where the sidewalks were comparatively smooth, they would help you over the rough patches. Here where such help is needed, that help is not available.

In the city of Rochester where the distances were multiples of the distances here, I could go for a pittance.
Here the "real cost" to go for my 2 mile trips is $27.50!!!! In Rochester this cost $1.75.

I am tired of being BLAMED for what SHOULD exist, what should be available. When the rest of the civilized world
offer some options.

Help me, Lord, Help me.

Worse Than EVER

BUT, the great undoer.


I had to be lifted over a 2.5 inch step to enter my house.
My ramps at the front and back were both too steep for me to try alone.
I had been told that it only appeared that way in the pictures.
They both were too step in that NEITHER met ADA standards.

And inside, I could not get off my shower char... the slope downward in the shower
just enough for me to be unable to managage alone.

So back in my accessible home, I have new inaccessibilities and now
require help where I had not had and did not need any for two years....


It's been MONTHS of calls, cajolings, administrivia and the
salt in the wound of woundedness occurred today.


I called to double check on my transport for the doctor's tomorrow,
even though they told me to call the morning of, I hate to leave things until the last moment.

I chatted about the time... the doctor's appointment is for 11:15
and would the van be here at 10:30 later, sooner?

The doctor's office is over the bridge, across from the Museum,
5 minutes away.

They put me on hold then a woman came on and told me
that a mistake had been made, they don't do Dial a Ride in
Corning.

Now this is after a dozen phone calls to find them, call again to get the forms,
send in the forms, ascertain whether the forms where received, check on the progress
of the status of being certified, assuring that I was certified. making the reservation....

I started this process before even making the doctor's appointment and
the doctor's appoint was made the first week in March for May 2.

I had been annoyed that it was 8 dollars each way, regardless of distance,
now there are no door to door options for me.

The idiot apologized but i was apoplectic.

How how how how and then knowing she made this error why couldn't she
just provide me my ride to the doctor?


She could do a route deviation which will cost me $3--- my
barrier is that I still can't get in and out my house alone!!!!!

They are coming tomorrow to bolt down the warping boards but will not
extend the too steep front and won't fix the still hard to get off back ramp.

Anyway a million phone calls later, my aide has switched her time
and will be here to help me on the bus and I pray I'll be able to figure out a way to get back in the
house.
I'm very depressed and tired of arguing, calling and this kind of crass moronic incompetence
and cruelty.